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Best Approaches to the Care of Systemic Sclerosis Patients

  • Tracy M. Frech
    Affiliations
    Division of Rheumatology and Immunology, Department of Internal Medicine, Vanderbilt University Medical Center, Tennessee Valley Healthcare System Veterans Affair Medical Center, 1161 Medical Center Drive, 3113-B, Nashville, TN 37212, USA
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Published:March 01, 2023DOI:https://doi.org/10.1016/j.rdc.2023.01.019
      In this issue, the world’s leading experts review the best approaches to patient care for patients with systemic sclerosis. Systemic sclerosis is an autoimmune disease with severe multiorgan system manifestations with heterogeneous rates of progression, which occurs in children and adults. This comprehensive series covers a thoughtful approach to assessing an individual patient and applying scientific principles of vasculopathy, fibrosis, and immune dysfunction to treatment decisions. Organ-specific manifestations and treatments, including skin, joint, heart, lung, and kidney, are reviewed by expert rheumatologists. A comprehensive care plan that involves professionals in mental health, occupational therapy, physical therapy, and wound care is highlighted as valuable in the care of the systemic sclerosis patient. The importance of education for trainees in a systemic sclerosis physical exam is discussed. The critical topic of involving patients as partners and registry-based discovery is reviewed. The only way to truly understand the burden of disease for patients with systemic sclerosis is with international partnerships and perspectives. This issue provides guidance for treating health care providers on best approaches to care of systemic sclerosis patients.
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